Thursday, March 24, 2011

Simple Thought for Today

"Sometimes the perfect person for you is the one you least expect."
Unknown author

Thursday, March 17, 2011

Will you "Let Us In!"?

March 2st is World Down Syndrome Day and is known by the date. Since there are 3 copies of the 21st chomosome that make up Down syndrome, it is fitting that we celebrate on the 21st day of the 3rd month-get it?

Monday, March 14, 2011

ABLE Act-Important for our Families

Note from Jo Ann: Last month , I traveled to DC to speak with membersof our congressional delegation about the ABLE Act. Congressman Crenshaw says it well:

Editorial by Congressman Ander Crenshaw

Equality. Americans have strived to open the door to its strength across generations of our nation’s history. And, no population may understand the dedication and footwork needed to realize a level playing field for its players more than the disabled.

Great strides have been made to ensure that fewer of the disabled fall through society’s cracks. But there is ample ground to cover before they have the same opportunities as other Americans. A good place to continue that fight is in the area of financial planning.

Today, the federal government encourages Americans to save for future needs through a variety of tax-advantaged savings accounts: individual retirement accounts, education savings accounts (529s), medical savings accounts, and employer savings accounts (401-ks). With the right tools in place, life’s horizon can be brighter. Without them, dreams can pass by in the blink of an eye.

That’s why I am so encouraged by the growing number of supporters behind my “Achieving a Better Life Experience Act” (ABLE) to create tax-deferred savings accounts for the disabled. To date, 184 House Members and 22 United States Senators are co-sponsors of this legislation. Special Olympics, the National Down Syndrome Society, Autism Speaks, and National Fragile X Foundation are among a long list of organizations also supporting the bill. All understand the need to crack open a wider door to equality for the disabled.

The average cost of raising a child with a significant medical disability is more than $1 million over the course of their lifetime. Continuing education, transportation, housing, and medical care make up some of the predictable costs on that staggering bill.

ABLE accounts would relieve some of that burden, by allowing parents with disabled children or family members of disabled individuals to invest through a tax deferred savings account that could be drawn from for these future expenses. No longer would they have to stand aside and watch as others use IRS-sanctioned tools like 529 education savings accounts to lay the groundwork for a brighter future. They would be able to do so for their child as well.

Creating an ABLE account is as simple as opening an account at the local bank. Anyone currently receiving supplemental security income (SSI) benefits would be eligible, and qualified expenses include educational and transportation expenses, medical and dental care, and employment and training support.

Anyone may contribute to an ABLE account and rollovers would be allowed without penalty; however contributions to these accounts are capped at $500,000. Under the proposal, the principle in the account would accrue interest tax free during the life of the beneficiary. When distributions are made to the beneficiary for qualified expenses, the distributions are excluded from the gross income of the beneficiary.

In real life terms, that means young Sydney Leach, who was born with Down Syndrome in Jacksonville, Florida and is now finishing first grade, can plan for her future. A bright student who can read, write, and perform simple arithmetic, she hopes to gain a post-secondary education. Eventually, Sydney will work and earn a salary just as millions of other Americans do. Under current law, however, she cannot keep more than $2,000 in assets (whether earned or through gifts) or she will lose her benefits, such as Medicaid and Social Security Disability Insurance. With an ABLE account, that roadblock would be lifted enabling her to save and use her earnings to cover qualified expenses.

The cost to reform U.S. tax code to offer ABLE accounts would be minimal, but the positive impact for Sydney Leach, her family, and others who are struggling to cope with an uncertain future would be sizeable.

They and all the disabled deserve that opportunity. A change in the tax code so they can Achieve a Better Life Experience is a step forward toward equality with every other American – a step worth taking.
Senator Scott Brown

Rep. John Tierney of my home district.

A blurry pic of Sen. John Kerry

Friday, March 11, 2011

The "Shut Up Sisters" Are Coming to Cushing-October 1

Meet the “Shut Up Sisters”

Mary Kate and Ashley minus the twinness and the thinness.

Gina (Terrasi) Gallagher and Patricia (Terrasi) are sisters who share a love of wine, humor, and writing (excluding checkwriting). They are also among the growing number of parents raising children with disabilities. Inspired by the success of their sisterly heroines, Mary Kate and Ashley, and fed up with listening to parents brag about their “perfect children” and never asking about theirs, the sisters decided to seek therapy by writing a book. So in 2006, they self-published their first book, Shut Up About Your Perfect Kid! The Movement of Imperfection, which explores the humorous, heartwarming side of raising an imperfect child in a world pre-occupied with perfection.

It wasn’t long before the book starting selling and the sisters were asked to come and speak at parenting, autism, and mental health conferences in Massachusetts and other exciting parts of the country. “Pack your bags, Gene, we’re going to Akron, OH, the birthplace of rubber.”

With strong sales, the book was picked up by Random House and in August 2010, an expanded version, Shut Up About Your Perfect Kid! A Survival Guide for Ordinary Parents of Special Kids, was introduced. The new book includes helpful tips, information, and inspiration to help caregivers of special children cope with the challenges of managing “imperfect” children in a world-pre-occupied with perfection. The book features a Foreword by Dr. Ross Greene and prescriptive advice from Lee Ann Karg, M Ed, a Disability Advocate.

They will be speaking at our Hanover campus on Ocotber 1, 2011 as our Opening Act of our fabulous fall Harvest Festival.

Wednesday, March 9, 2011

Read Across America Came to Cushing

Thank you to all of our wonderful volunteers who recently read at the Cardinal Cushing 2011 Read Across America Celebration! We also celebrated the birthday of the late Dr. Suess. The highlight of the morning for me was student Lee R., who rapped and Matt F. who read a Dr. Suess book. They were the stars of the morning!!!!


Students and staff alike had a relaxing morning of stories and rhymes, provided by the following volunteers:

Lee R.
The McElmans
Jo Ann Simons
Larry Sauer
The State Street Volunteers
John Pappone
Roberta Pulaski
Matt F
The OT, PT and Speech Specialists!

The McElman family
This important event further enhances our student’s joy of reading and whimsy. We all appreciate the efforts of everyone involved.